Hello Brave Friends! On this story episode, #163, we are exploring one mom’s experience, when not one but TWO of her seemingly thriving, healthy children were diagnosed, right in the middle of high school, with a rare genetic disorder. 

Megan Loden was blindsided, not only by her twin daughter’s diagnosis, but by the slow fade of her typical community into the background, as she stepped into her own medical motherhood. And then a doctor recommended she look up groups online and the rest is history. 

Welcome to today's story episode: Community is Everything 

Megan Loden  was a freelance writer before her world was turned upside down and she would love nothing more than to help others feel less alone through her writing now, as many seasoned veterans to the rare parenting world did when she was lost and terrified of her childrens’ diagnoses. Having a child (or two) with a rare genetic disease is not for the faint of heart, but she wants to assure you, if she can manage, so can you!

Find Megan Loden on Instagram here.
Find Megan Loden’s Website here.  

Brave Together is the podcast for We are Brave Together, a not-for-profit organization based in the USA. The heart of We Are Brave Together is to strengthen, encourage, inspire and validate all moms of children with disabilities and other needs in their unique journeys. 
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