Walking on Eggshells with Epilepsy with Erin Rusling - Episode 172
Hello Brave Friends! In this story episode, #172, we enter the world of a parent living on unstable ground. An emotional state riddled with fault lines, shifting plates and the possibility that even a fun outing could cause an earthquake of a seizure in her child’s body.
Erin Rusling’s daughter was born with Dravet Syndrome, a rare and severe form of Epilepsy that causes prolonged seizures. Almost two, at the time of this story, Erin’s daughter had already had many seizures and had come out of them with minimal measures, but the BIG ONE was never impossible and always lurking.
Welcome to today's story episode: Walking on Eggshells with Epilepsy.
Erin is a wife, mom of 2 human children and 3 fur children. She loves making pancakes on Sunday mornings, planning family vacations and listening to true crime podcasts. She stays busy balancing work, family, Dravet medical research and looking for her cold cup of coffee that she knows is around here somewhere. She believes that research and advocacy is the most important part of being a rare parent.
Brave Together is the podcast for We are Brave Together, a not-for-profit organization based in the USA. The heart of We Are Brave Together is to strengthen, encourage, inspire and validate all moms of children with disabilities and other needs in their unique journeys.
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