Let’s Shine a Light on Rare Diseases: When it's My Fault Episode #57
WED, 28 JUL 2021 ◦ 34 MINUTES
We continue our series Shine a Light on Rare Diseases, and this week we speak to Madeline Cheney @the_rare_life about her adorable son, Kimball, and about living with grief and guilt as a mother and genetic carrier. Madeline is the leader of the Utah @wearebravetogether support group, so please do reach out if you live in the area and want to join the community. She is also the creator and host of The Rare Life, a podcast about parenting children with rare medical conditions. Her gracious, vulnerable words will inspire and comfort any mother carrying similar questions; you are not alone!